“The patient is at the center”.
A phrase often repeated—almost a mantra—in our daily speech. But can we be sure it isn't just a well-intentioned slogan?
Over the past few years, the idea of the patient as a true partner has gained visibility in strategic documents, policy discussions and sustainability reports. Yet, a significant gap persists between this intention and the genuine patient inclusion in decision-making processes.
Being a “partner” means more than just being informed—it entails active involvement, access to relevant information, and the ability to influence outcomes. This principle applies across pharma, research institutions, and healthcare systems. However, the risk remains that patient engagement is reduced to symbolism—a token presence at carefully curated moments—without real listening or impact.
To achieve meaningful patient involvement, structured and intentional approaches are essential. Encouraging practices are emerging:
- Including patients in scientific and advisory boards,
- Engaging them in the design and review of clinical trials,
- Integrating patient perspectives into Health Technology Assessment (HTA) processes, where they provide vital real-world insight on value and quality of life.
But true participation requires preparation. Patients must be empowered with the right tools, including education, accessible language, and transparent dialogue.
In today's evolving healthcare landscape—one that is increasingly outcome-driven, sustainable and participatory—patient engagement is not optional. It is a strategic asset critical to designing solutions that are more relevant, equitable and enduring.
The patient as partner is not merely an aspirational vision. It’s a reality within reach, though it demands commitment, structure, and a fundamental shift in mindset. Beyond rhetoric.